Friday, March 14, 2014

Wouldn't It Be Nice!

"Wouldn't it be great if, when you got the diagnosis of autism for your child, instead of the neurologist saying: "i regret to inform you...' he/she said instead: 'congratulations! your child has a special genius gene! The challenge and adventure is going to be how we access that genius. But it IS and adventure, and here are all these of adult autists, even severe ones, who have gone on to have careers, love lives, who contribute hugely to society. And we are in lock step, should to shoulder with you on that adventure.' Then they point to a bucket of champagne on ice, open it up, pour out the glasses and say: "Now let's drink to that adventure!"
Imagine that
Let's celebrate autism. Horseboyfest.com. Sunday April 13th, Elgin Tx 78621.
LIVE FREE RIDE FREE"


This is a quote, I'm assuming that the quote is from The Horseboy's father.  Again, I implore you if you haven't seen, "The Horseboy", please watch it.  And if you're in the area of Elgin, TX, take advantage of this.  I really want to take Javy there, one day, so check it out for us.  

But anyway, this statement really hit home, because I believe that it helps illustrate a point that I've been trying to make.  So much time was wasted in the beginning of our adventures, by hurt feelings, denial, pride...  I guess, I could go on and on.  I'm sure if we went through it, then some other parents have, too.  I believe that we got to take the path that we take, and regrets are fruitless, but I'd like for someone to learn from my own.  Do whatever you can to get over the original hump and just move on with it.  Listen to each professional and even if hurts, if its what is best, go with it.  We've been at this for twelve years now.  I, either fall madly in love with the health and education professionals or go psycho on them.  

And its all got to do with approach.  I've got a saying of my own, "You can be right all the time, but if no one will listen to you, what good is it."  I really disliked the doctor who initially referred us over to early intervention. It would've been so nice if she would've approached it in the above manner.  I mean, right off the bat she told me something I didn't like.  Maybe if she would've said something like, "Hey, you're gonna be a great mom and get Javy through these challenges."  But she didn't and it doesn't really give me a right to disrespect her or anybody who doesn't tell me what I don't want to hear.  As the mom, I've got to sift through the information, and say thank you very much for your input and either, take or leave it.  Maybe if I would've been more realistic with what was going on at the time, and been more aggressive with getting Javy the therapies and more medical attention, more could've been done for him.  

I can't have the time back, but I've certainly learned from that mistake and moved on.  

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