Wow! So much has been going on these last couple of months, I can't believe it's already March.
Some updates on what's going on with us:
Javy had some testing done (I spoke about it in an earlier blog about the visit with the geneticist). He had a renal and heart ultrasound, both of which, were normal. He had his eyes and ears checked and everything seems good with his hearing and sight. He also had some blood work done for some specific genetic tests, like fragile x and some metabolic disorders. All his tests came back normal. When the genetics counselor called, she explained that one of his blood tests came back high, which could indicate some other stuff that they want to test further for. I'll give more details when they send me their report, so there's still hope of finding something before his next annual visit.
Javy still keeps improving, though. He's pulling himself to standing more. He's more alert and paying attention. He knows when the bus is coming to pick him up before it gets here, because he hears it coming down the road. And we have some good news:
My friends diligence paid off in his continuos effort to find a gait trainer for Javy. He bid on this gait trainer, which is the exact model that Javy's school PTs had recommended for him, and got it for $726.
And my other friend, chased down a man with a double jogger stroller and asked if we could have it. He was taking it to the thrift store, anyways. It's in pretty good condition and with some modifications, we can make it into a cruiser for Javy so he can go off-roading and beach strolls. I have to give credit where credit is due, though. All of these things occurred without me having to lift a finger. Well, I did go to the bank and withdraw the money that was in the savings account that we had been blessed with over the last few months. Thank you to everyone who contributed and sent prayers our way.
So now we're just waiting for next week, we have a trip to Oahu planned, then it's Spring Break and then a camping trip to Koke'e.
God bless
Some updates on what's going on with us:
Javy had some testing done (I spoke about it in an earlier blog about the visit with the geneticist). He had a renal and heart ultrasound, both of which, were normal. He had his eyes and ears checked and everything seems good with his hearing and sight. He also had some blood work done for some specific genetic tests, like fragile x and some metabolic disorders. All his tests came back normal. When the genetics counselor called, she explained that one of his blood tests came back high, which could indicate some other stuff that they want to test further for. I'll give more details when they send me their report, so there's still hope of finding something before his next annual visit.
Javy still keeps improving, though. He's pulling himself to standing more. He's more alert and paying attention. He knows when the bus is coming to pick him up before it gets here, because he hears it coming down the road. And we have some good news: My friends diligence paid off in his continuos effort to find a gait trainer for Javy. He bid on this gait trainer, which is the exact model that Javy's school PTs had recommended for him, and got it for $726.
And my other friend, chased down a man with a double jogger stroller and asked if we could have it. He was taking it to the thrift store, anyways. It's in pretty good condition and with some modifications, we can make it into a cruiser for Javy so he can go off-roading and beach strolls. I have to give credit where credit is due, though. All of these things occurred without me having to lift a finger. Well, I did go to the bank and withdraw the money that was in the savings account that we had been blessed with over the last few months. Thank you to everyone who contributed and sent prayers our way.
So now we're just waiting for next week, we have a trip to Oahu planned, then it's Spring Break and then a camping trip to Koke'e.
God bless
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