Soooo, it's about time for a new update and there's a lot to talk about. But I've got writer's block. I've been thinking about what I'm going to write all day, we've had a busy week. I waited and waited, waited until we got back from Salt Pond, waited until after we ate supper, waited until Javy went to bed. Now, I'm here... all alone, no distractions and nothing. So I might as well just start typing.
First off, the week (my weeks run from off days to off days-Wednesday to Wednesday, btw) began with a barbecue at Salt Pond with friends. Javy stayed in the pavilion and chillaxed with the ladies. But he also had time to do some downhill slopes.
Then on Thursday, we had to take the first flight out to Oahu for Javy's Dr.'s appointment, just to refill his baclofen pump, nothing major. We have to make this journey about every two months and we have our routine pretty well down pat. First, we arrive at the airport. The Hawaiian Airline's employees on the Lihue side always take care of us, they give us 4A & 4B, the two-seater side of the handicap aisle (or the Portugese first class, like I heard one man say on our last flight). I make sure to snap all of his straps together on the wheelchair so that when they put it under the airplane none of them get broken (learned this from experience). Since Javy isn't strapped down, I run him down the jet bridge with the wheels tilted up, park him, pick him up and carry him to the seat. For 20 minutes, I can relax.
Once the plane lands, everybody stands but us, we have to wait for the wheelchair. So I watch through the window. As soon as I see it coming up the stairs, I put the backpack on and unbuckle Javy. I look at the aisle and wait for the slightest gap. I grab Javy and make a run for it. The flight attendants, usually make some sort of noise at us, kind of like, "uh"and I just keep going cause I know it's out there. Strap him in and run up the jet bridge. Why the rush, you say? Well, I usually change his diaper, because I know that the airport has at least one surface in the women's bathroom that I can use to change him. Then we have to catch the bus, which is usually every half hour. When the bus stops at King and Punchbowl. we watch as all the people try to ambush the bus to get on, while the bus drivers starts to let down the wheelchair ramp. Depending on the weather or time, we run or stroll the two blocks to Queens hospital.
Have I lost your interest, yet. Well, this is a blog about bringing awareness regarding people with special needs and undiagnosed disorders. These are the things I have to think about and it's taken almost three years for me to get this routine down to a science. The first trip we took, I didn't know about the buses and we took a cab to Queen's. It cost $30.00. But I think I want my greater point of all this to be that I really don't think about it, too much. It's just how it goes, as parents we always have to think and prepare, there's just a little bit more extra planning that has to take place with Javy.
Well, we made it to the Dr.'s appointment. Of course, the doctor was 30 minutes late.
I think I'll finish our adventures tomorrow. It's getting late.
First off, the week (my weeks run from off days to off days-Wednesday to Wednesday, btw) began with a barbecue at Salt Pond with friends. Javy stayed in the pavilion and chillaxed with the ladies. But he also had time to do some downhill slopes.
Then on Thursday, we had to take the first flight out to Oahu for Javy's Dr.'s appointment, just to refill his baclofen pump, nothing major. We have to make this journey about every two months and we have our routine pretty well down pat. First, we arrive at the airport. The Hawaiian Airline's employees on the Lihue side always take care of us, they give us 4A & 4B, the two-seater side of the handicap aisle (or the Portugese first class, like I heard one man say on our last flight). I make sure to snap all of his straps together on the wheelchair so that when they put it under the airplane none of them get broken (learned this from experience). Since Javy isn't strapped down, I run him down the jet bridge with the wheels tilted up, park him, pick him up and carry him to the seat. For 20 minutes, I can relax.
Once the plane lands, everybody stands but us, we have to wait for the wheelchair. So I watch through the window. As soon as I see it coming up the stairs, I put the backpack on and unbuckle Javy. I look at the aisle and wait for the slightest gap. I grab Javy and make a run for it. The flight attendants, usually make some sort of noise at us, kind of like, "uh"and I just keep going cause I know it's out there. Strap him in and run up the jet bridge. Why the rush, you say? Well, I usually change his diaper, because I know that the airport has at least one surface in the women's bathroom that I can use to change him. Then we have to catch the bus, which is usually every half hour. When the bus stops at King and Punchbowl. we watch as all the people try to ambush the bus to get on, while the bus drivers starts to let down the wheelchair ramp. Depending on the weather or time, we run or stroll the two blocks to Queens hospital.
Have I lost your interest, yet. Well, this is a blog about bringing awareness regarding people with special needs and undiagnosed disorders. These are the things I have to think about and it's taken almost three years for me to get this routine down to a science. The first trip we took, I didn't know about the buses and we took a cab to Queen's. It cost $30.00. But I think I want my greater point of all this to be that I really don't think about it, too much. It's just how it goes, as parents we always have to think and prepare, there's just a little bit more extra planning that has to take place with Javy.
I think I'll finish our adventures tomorrow. It's getting late.
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